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Alzheimer's and dementia FAQ

Stages of dementia, and the difference between Alzheimer's and dementia

The stages of dementia are usually described as early (mild), middle (moderate) and late (severe), and every person moves through them differently. Many families also ask about the difference between Alzheimer's and dementia: dementia is an umbrella term for a decline in memory, thinking and reasoning that gets in the way of daily life, and Alzheimer's disease is the most common disease that causes it.

People often use the two words as if they mean the same thing, so it's no wonder families feel confused. Below are clear answers to the questions caregivers ask most, from "Is this just old age?" to what each stage looks like.

Alzheimer's vs dementia, in one minute

Think of dementia as the name for a group of symptoms, and Alzheimer's as one of the diseases that causes them.

Dementia is not a disease in itself. It describes memory loss, confusion and changes in thinking, behavior or communication that are serious enough to affect everyday life.

Alzheimer's disease is a progressive brain disease and the most common form of dementia, accounting for 60–80% of dementia cases.

So everyone living with Alzheimer's has dementia, but not everyone with dementia has Alzheimer's. Other causes include vascular disease, Lewy body disease and frontotemporal disorders.

These answers come from the Alzheimer's & Dementia Resource Center (ADRC) a nonprofit that has supported caregivers in Orange and Seminole counties since 1984. Questions about your own family? Call (407) 436-7750.

For more detail, see the National Institute on Aging's Alzheimer's and dementia information, the CDC's About Alzheimer's and dementia and the Alzheimer's Association's Dementia vs. Alzheimer's.

Stages of dementia and what to expect

What are the stages of dementia?

Dementia is often described in three stages: early (mild), middle (moderate) and late (severe).

  • Early stage: the person is mostly independent but has memory lapses, trouble finding words or planning.
  • Middle stage: usually the longest. Confusion grows, behavior may change, and the person needs more help with daily tasks.
  • Late stage: the person needs help with nearly all daily care and has great difficulty communicating.

Every person moves through the stages differently. Learn more from the Alzheimer's Association's stages of Alzheimer's.

What are the 7 stages of dementia? (stages chart)

Some doctors use a 7-stage scale to describe changes in more detail. Here it is as a simple chart:

StageNameWhat you may noticeStage of dementia
1No impairmentNo noticeable memory problems.Early
2Very mild declineSmall memory lapses that may feel like normal aging.Early
3Mild declineFamily and friends begin to notice problems with memory or concentration.Early
4Moderate declineClear trouble with recent events, money and complex tasks.Middle
5Moderately severe declineNeeds help with some daily activities, like choosing clothes.Middle
6Severe declineNeeds help with dressing, bathing and toileting; personality changes are common.Late
7Very severe declineLoses the ability to speak, walk or respond to their surroundings and needs full-time care.Late

Every person is different, and stages can overlap. The chart is a guide, not a timetable.

How quickly does dementia progress? Why did my person get worse so fast?

It varies a lot from person to person. The type of dementia, age, other health conditions and the care a person receives all play a part.

If your person was walking and talking last week and can't now, call the doctor. A sudden decline can be caused by something treatable, such as an infection, dehydration or a medication problem. A hospital stay or a fall can also bring on a sharp change.

What is the life span of someone with dementia?

There's no single answer. With Alzheimer's disease, survival can range from four to 20 years after symptoms appear, depending on the person's health.

Your person's doctor is the best guide for your situation. Our free "End-of-Life Care" tip sheet in the Caregiver Resource Library can help you plan ahead.

What happens in the last stage of dementia, before death?

Dementia is a terminal illness, and the last stage can be hard to watch. Many families say no one prepared them for it. In stage 7 of the chart above, your person may:

  • Need help with all daily care, and spend more time in bed or sleeping.
  • Speak very little or not at all.
  • Have trouble swallowing, eat and drink less, and lose weight.
  • Be more likely to get infections, such as pneumonia.

This is a good time to ask the doctor about hospice and comfort care. Before a big treatment, such as surgery after a fall, it's fair to ask: will this help my person feel better, and what will recovery look like for them? You don't have to face these decisions alone. A caregiver support group or a free Care Navigation session can help you think it through.

How do I know when my person needs more care?

It's usually time for more help when safety becomes a worry, or when your own health starts to suffer. Common signs include wandering or getting lost, leaving the stove on, falls, missed medicines, or needing help with bathing and dressing.

More care doesn't have to mean moving. It can start with adult day care or in-home care. Our Information & Referral page explains the options, and a caregiver support group is a good place to hear how other families decided.

Alzheimer's and dementia: the basics

What is the difference between Alzheimer's and dementia?

Dementia is the general term for a group of symptoms. Alzheimer's is a specific disease that causes those symptoms.

A helpful comparison: "heart disease" covers many conditions, and a heart attack is one of them. In the same way, "dementia" covers many conditions, and Alzheimer's is the most common one.

Are Alzheimer's and dementia the same thing?

No, but they're closely related. Everyone living with Alzheimer's has dementia, but not everyone with dementia has Alzheimer's.

"Dementia" tells you that someone's memory and thinking have changed. It doesn't tell you why. Finding the cause, whether it's Alzheimer's or something else, is the doctor's job.

What is dementia?

Dementia is a decline in memory, thinking, behavior or communication that is serious enough to interfere with daily life. It isn't one illness. It's a collection of symptoms caused by different diseases and conditions that damage the brain.

Dementia is not a normal part of aging. If a doctor says "it's dementia" or "it's just old age", ask: which type? Knowing the cause helps you plan.

What is Alzheimer's disease?

Alzheimer's disease is a form of dementia that affects brain function, including memory, behavior and reasoning. It is progressive, which means it gets more severe over time.

In Alzheimer's disease, abnormal proteins build up in the brain, forming plaques and tangles that damage and eventually kill nerve cells. The changes usually start in the parts of the brain that form new memories, which is why recent memory is often affected first.

Its effects range from mild memory loss in the early stages to being unable to care for oneself in the late stages.

Which is worse, dementia or Alzheimer's?

Neither is "worse", because they aren't two separate things. Alzheimer's is one type of dementia.

How hard the journey is depends on the cause of the dementia, the stage, and the person's overall health and support.

Which comes first, Alzheimer's or dementia? Does dementia turn into Alzheimer's?

Dementia doesn't turn into Alzheimer's. Alzheimer's is the disease, and dementia is the set of symptoms it causes as it progresses.

Changes in the brain from Alzheimer's begin before symptoms appear. Dementia describes the point when those changes start affecting daily life.

Many people think a mild memory problem is "dementia" and that it becomes "Alzheimer's" when it gets bad. That isn't correct. Alzheimer's can be the cause even in the very earliest, mildest stage.

What are the other types of dementia?

Besides Alzheimer's, the most common types include:

  • Vascular dementia: caused by reduced blood flow to the brain, for example after strokes.
  • Lewy body dementia: caused by abnormal protein deposits in the brain. It can bring visual hallucinations, movement problems and alertness that changes from day to day.
  • Frontotemporal dementia: damage to the front and side areas of the brain. It often changes personality, behavior or language first.
  • Mixed dementia: more than one cause at the same time, such as Alzheimer's and vascular changes.

Read our guides to the types of dementia and Lewy body dementia.

What is Lewy body dementia?

Lewy body dementia is a type of dementia caused by abnormal protein deposits, called Lewy bodies, in the brain. These deposits affect thinking, movement, sleep, behavior and mood.

Common signs include visual hallucinations, alertness and attention that change from day to day, stiffness or shuffling like Parkinson's disease, and acting out dreams during sleep. It includes dementia with Lewy bodies and Parkinson's disease dementia.

Read our full Lewy body dementia guide, or read the National Institute on Aging's What is Lewy body dementia?

What is vascular dementia?

Vascular dementia is caused by reduced blood flow to the brain, which damages brain cells. It can follow a major stroke or a series of small strokes, or come from other damage to the brain's blood vessels.

Symptoms depend on which part of the brain is affected. Problems with planning, judgment, focus and slowed thinking are often more noticeable than memory loss at first, and changes can come in steps rather than slowly.

Managing blood pressure, cholesterol and diabetes may help lower the risk. Learn more from the National Institute on Aging's vascular dementia information.

What is mild cognitive impairment (MCI)? Is it dementia?

Mild cognitive impairment, or MCI, is a small but noticeable change in memory or thinking. It's more than normal aging, but it isn't dementia, because the person can still manage everyday life on their own.

Some people with MCI go on to develop dementia. Others stay the same for years, and some get better, especially when the cause is treatable.

A diagnosis of MCI can be frightening. Regular check-ups help the doctor watch for changes. Learn more from the National Institute on Aging's What is mild cognitive impairment?

Is dementia genetic or hereditary? Will I get it if my parent had it?

Usually not directly. Having a parent, brother or sister with Alzheimer's raises your risk somewhat, but it doesn't mean you will get it. Most people with a family history never develop the disease.

A few rare forms of Alzheimer's, which usually start before age 65, are caused by gene changes passed down in families. A more common gene, called APOE e4, raises the risk but doesn't decide whether someone gets the disease.

If you're worried, talk to your doctor before ordering a genetic test. Our free "Alzheimer's Disease Genetics Fact Sheet" and "Preventing Alzheimer's Disease: What Do We Know?" booklet are in the Caregiver Resource Library.

How can you tell if it's dementia or Alzheimer's?

Only a doctor can tell, after a thorough evaluation. There is no single test for Alzheimer's.

Doctors work to rule out other conditions that can cause similar symptoms, such as infections, thyroid problems, vitamin deficiencies or medication side effects. Some of these can be treated.

A full evaluation usually includes a medical history, a mental status check, a physical exam, lab tests, and sometimes brain imaging and a neurological exam. Our free one-page guide, "Getting a Proper Diagnosis", walks you through each step. Find it in the Caregiver Resource Library.

What are the warning signs of dementia?

The most common early warning sign is memory loss that disrupts daily life. Often it's family who notice first: the same question asked again and again, unpaid bills, or getting lost on a familiar drive. If you notice any of these changes in someone you love, talk to their doctor.

The Alzheimer's Association also publishes a helpful list of 10 early signs and symptoms.

  • Memory loss or confusion

    Forgetting recent events or conversations, asking the same question over and over, or getting lost in familiar places.

  • Changes in behavior

    Wandering, agitation, hiding things or acting out of character.

  • Trouble with routine tasks

    Difficulty following instructions or finishing everyday tasks like cooking, paying bills or getting dressed.

  • Changes in personality

    Becoming withdrawn, suspicious, anxious or simply not themselves.

  • Losing track of time

    Confusion about the day, the season or the passage of time.

  • Speech and communication problems

    Struggling to find words, follow a conversation or name familiar things.

  • Not recognizing people or objects

    Difficulty recognizing familiar faces or knowing what common objects are for.

  • Trouble with purposeful movements

    Difficulty with movements they've done for years, like using a fork or buttoning a shirt.

Signs, screening and diagnosis

What are 5 warning signs of dementia?

Five common warning signs are memory loss that disrupts daily life, trouble with familiar tasks, confusion about time or place, problems with words and conversation, and changes in mood or personality.

Seeing one sign doesn't mean someone has dementia. It does mean it's time to talk to a doctor.

Is it dementia or normal aging?

Occasional forgetfulness, like misplacing your keys or forgetting a name and remembering it later, is a normal part of aging. Dementia is different: the memory and thinking problems keep getting worse and start to get in the way of everyday life.

If you're unsure, a memory screening is a simple way to get a baseline.

Is it normal that my person remembers the past but not what happened this morning?

Yes, this is very common. Dementia, especially Alzheimer's, usually affects new memories first. Memories from long ago are often stored more deeply and last longer.

So your person may tell a clear story from 50 years ago but not remember lunch or a conversation from an hour ago. It isn't on purpose, and it isn't a sign they're "not trying". As the disease progresses, older memories can fade too, and many people come to live mostly in the present moment.

Is sudden confusion a sign of dementia? Is delirium a form of dementia?

No. Confusion that starts suddenly, over hours or days, may be delirium. Delirium is not a form of dementia. It's a medical problem that needs a doctor right away.

Delirium is often caused by something treatable, such as an infection (including a urinary tract infection), dehydration, a new medication or surgery. Dementia, by contrast, usually develops slowly over months or years.

A person living with dementia can also get delirium. If your person suddenly becomes much more confused, sleepy or agitated than usual, call their doctor the same day.

How do I find out if my person has dementia?

Start with their primary care physician. The doctor can rule out other conditions that can look like dementia.

At the same time, consider a free memory screening at a local research company. ADRC board member Dr. Malisa Agard of Conquest Research recommends a baseline memory screening after age 55, so changes can be spotted early.

Need help getting started? Call us at (407) 436-7750.

My person says nothing is wrong and won't see a doctor. What do I do?

You're not alone. Denial is very common, for the person and for families. Sometimes a husband and wife are both in denial for a while, and many caregivers go through it before they reach out.

A few things often help:

  • Call it a routine check-up or a medication review rather than a "memory test".
  • Share what you've noticed with the doctor before the visit, in a short note or phone call.
  • Go along to the appointment so you can fill in details your person may forget.
  • Remind your person, and yourself, that some causes of memory problems are treatable.

If you're stuck, book a free Care Navigation session and we'll talk through your next step together.

What is a cognitive test?

A cognitive test is a short set of questions and tasks that checks memory, attention, language and problem-solving. Doctors use it to see whether thinking skills have changed and whether more testing is needed.

Common examples ask the person to remember a few words, draw a clock, name objects or answer questions about the date. Most take 5 to 15 minutes. A cognitive test is a screening tool. It can't diagnose dementia on its own, but it's a helpful first step and a baseline to compare against later.

What is the 3 word test for dementia?

The 3-word test is a quick memory screen. The person is asked to remember three unrelated words, does a short task such as drawing a clock, and then tries to recall the three words.

It's one of several short screening tools doctors use. It can flag a possible problem, but it can't diagnose dementia on its own.

What is the 2 finger test for dementia?

The 2-finger test is a simple hand-gesture task. The person watches someone make a shape with their fingers and then tries to copy it.

Difficulty copying the gesture can be a sign of changes in the brain. Like other quick tests, it's a screening tool only, not a diagnosis.

Is there a blood test for dementia?

Some newer blood tests can look for signs of Alzheimer's changes in the brain. Doctors may use them as one part of a full evaluation for someone who already has symptoms.

No blood test can diagnose dementia on its own. Before buying a test online, talk to your person's doctor about whether it would help and what the results would mean.

Is there a cure for Alzheimer's?

There is no cure for Alzheimer's disease yet. Medications are available that may slow the progression of the disease in some people for a period of time.

Researchers are constantly working toward a cure. Florida families can support that research through the State of Florida Brain Bank.

Day-to-day caregiving questions

What is the 90-second rule for dementia?

The 90-second rule is an informal caregiving tip, not a medical guideline. The idea is that a wave of strong emotion usually peaks and fades within about 90 seconds if nothing adds fuel to it.

When your person becomes upset, or when you do, pause before you react. Breathe, stay calm and give the feeling a minute and a half to pass. Then gently reassure or redirect.

Many caregivers also use the same pause after asking a question. Giving your person extra time to answer, without rushing or repeating, can make the conversation easier for both of you.

How can I keep my brain active?

Stay active and engaged, and change up your routine. Even a small change can make you think in a different way. Try these:

  • Brush your teeth with your non-dominant hand.
  • Close your eyes while getting dressed or doing another simple task.
  • Wear earplugs for a while to experience the world without sound.
  • Turn pictures or clocks upside down.
  • Start a new hobby.
  • Learn a musical instrument, or anything that's completely new to you.

Music can be a powerful way to connect, too. Read Remember My Song: The Power of Music.

Where can I get help caring for someone with dementia in Central Florida?

Call the Alzheimer's & Dementia Resource Center (ADRC) at (407) 436-7750. We've served caregivers in Orange and Seminole counties since 1984, and our services for caregivers and care partners are provided at no cost. Learn more about who we are.

We offer Care Navigation sessions, caregiver support groups in person and online, and referrals to trusted local services like adult day care and in-home care. For encouragement along the way, our free Renewed Care devotional offers a short weekly moment of faith and rest for care partners.

Help and support are available. Reach out to us.

Every family's situation is different. Call us Monday to Friday, 8:30 AM to 4:30 PM, and we'll help you understand what's happening and what to do next.